Goal
#1 |
To
increase access to care and improve quality of life for persons living with
HIV and AIDS. |
Objectives
|
- Through
the Ryan White Comprehensive AIDS Resources Emergency (Care) Act (RWCA),
improve accessibility and quality of care for all persons living with
HIV.
- Develop
comprehensive and participatory planning processes at the state and
local levels to guide funding allocation decisions. Increase patient
access to clinical research.
- Establish
quality guidelines and evaluate program effectiveness.
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Action
Steps
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- Support
comprehensive outpatient, ambulatory health and support services, case
management, and inpatient case management services that prevent unnecessary
hospitalization or expedite discharge (RWCA Title I);
- Support
consortia to improve the quality and availability of health care, including
home and community-based services, continuation of health insurance,
purchase of AIDS drugs, direct provision of care for individuals and
families living with HIV and AIDS (RWCA Title II);
- Develop
a minimum drug formulary for federally-assisted AIDS Drug Assistance
Programs (ADAP -RWCA Title II);
- Support
outpatient early intervention services for low-income medically underserved
people in existing primary health care systems (RWCA Title III);
- Support
comprehensive care services for affected women, infants, children, and
youth in a comprehensive community-based, family-centered system of
care (RWCA Title IV);
- Support
initial development of care systems linked to research for children,
youth and women in seven new communities;
- Enhance
linkages between care providers and sites where research is conducted;
- Provide
leadership, training, and technical assistance;
- Convene
youth and family leadership conferences and distribute findings;
- Develop,
distribute, and train providers on quality indicators and quality assurance
guidelines for the clinical management of HIV disease;
- Develop
guidance for grantees in developing local strategies for changes in
the standard-of-care; and
- Evaluate
program effectiveness through development of common evaluation criteria
of CARE Act grants that address program delivery and program outcomes
and establishment of evaluation measures that are unique to each Title.
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Description
|
Provide
RWCA-supported services through individual grantees and service organizations.
In addition to these broad-based efforts, support a variety of focused
initiatives such as the adolescent research and clinical network and a
cooperative agreement with Institute of Family-Centered Care to provide
training and technical assistance to youth and families.
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Resources
|
FY95
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FY96
|
FY96
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Title
I
Title II
Title III
Title IV
|
$
356.5 million
198.1 million
52.3 million
26 million
|
$
391.7 million
260.8 million
56.9 million
29 million
|
$
449.9 million
417.0 million
69.6 million
36.0 million
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Populations
Served
|
HIV positive
individuals and their family members, low income persons with HIV/AIDS,
pregnant women living with HIV/AIDS, neonates and children born to HIV
positive women. In addition, RWCA grantees and planning councils receive
technical assistance in conducting and evaluating their programs.
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Constituency
Involvement
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The input
and guidance of PLWAs and affected communities is gathered through a variety
of avenues. Constituents are represented on the HRSA AIDS Advisory Committee,
and RWCA planning councils, with the input of broad-based local representation,
guide local prioritization of RWCA funds.
The development
of evaluation measures is a participatory process whereby local groups
assist in the development of self-assessment tools. Local participants
have early and ongoing involvement in all phases of data collection design,
planning, and implementation.
In addition,
focus groups, workshops, and discussion groups of PLWAs, providers of
HIV care, State and local officials, researchers, and national groups
review proposed policies, program directives, and planning and evaluation
activities to ensure constituency input.
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